
“Aymar Pahreek? Did I get that right?”
Sure.
“You have the patient in room B-28. She, uh, she should be alright with you performing a full history and physical on her…I’m not sure. I guess just let me know if you have any problems.”
With that reassuring introduction, the resident directs me to ‘my’ very first patient - DR in room B-28. I’m standing in the Surgery Ward of Elmhurst Hospital, one of the primary clinical sites that Mount Sinai medical students are dispatched to throughout their clinical training. DR is the person I’ll be speaking to for the next 2 hours in a clumsy, misguided attempt to practice obtaining a ‘thorough patient history’ as well as a pantomime performance of the ‘full physical exam’. Up until this point, we’ve been practicing on peers and professional actors hired to serve as standardized patients. But today, for the first time as students training for careers in medicine, we are to be set loose into the wild, armed only with a clipboard, pen, and several archaic diagnostic instruments that include, of all things, a tuning fork and reflex hammer. I hesitate outside her door and gather my wits about me - Stay confident. Don’t let her sense the fear on you, I tell myself. I close my eyes and briefly envision the image of the doctor all guys wish they were - a towering figure with a commanding presence and resonant voice, possessing a reassuring touch and an efficiency of movement and words that inspires confidence in all my patients. Never mind that I’m 5’8”, my voice more tenor than bass, and I’m nervous as hell. I take a deep breath and walk in.
DR is lying on the hospital bed, in obvious fatigue and distress. Sunlight streams into her room from the window, and I quickly try to take in as many details as I can upon my first survey of the room:
- She looks like she’s Filipino and in her 50s. There’s a palpable, quiet resignation on her face.
- She has a catheter in place. I can see it leading out from underneath her gown, and it’s partly filled with urine.
- Another tube leads out from her left chest and is draining what appears to be a small amount of blood. I make a mental note to ask about this later.
- The chair that I was planning to sit in is draped in a white cloth and features a sizable bloodstain. Probably not a good idea to sit there. Slight panic, this isn’t the way it was scripted - should I stand for this entire thing? But wouldn’t that create a physical distance between us? That’s gotta be breaking some rule of patient etiquette, right? But I can’t sit there! Shit.
As all this flits through my mind instantaneously, I introduce myself to her, and I can already feel my voice slipping into that cloying, ‘hi I’m just a medical student, please put up with me’ tone that I was trying so hard to avoid. She turns to look me right in the eye and hits me with a smile that I won’t forget, especially in the context of what I am about to learn.
I move to her side and begin the conversation about why she’s at Elmhurst. I watch as my blank sheet of paper slowly fills up with scribbles, notes, question marks, cross-outs, abbreviations. Somewhere in this mess, her story emerges.
“DR is a 52-year-old asthmatic woman who began experiencing a sharp, stabbing pain below her left lower rib roughly 2 weeks ago. The pain was so severe that it woke her up at night, and on a scale of 1 to 10, the pain initially presented as a 10/10. She took tylenol to relieve the pain which helped, though 4 days later, the pain became unbearable, and she checked herself into the Elmhurst ED. Imaging studies were done, and a mass was found in her left lower lung —”
I pause here. I know where this is going. I could sense it from the broken smile she gave me the second I walked in.
“—a lung biopsy was subsequently performed and analyzed, revealing a malignant, cancerous hilar mass with an array of cancerous nodules spreading throughout her left lung.”
I pause again, and look up at her as she relays this information to me. Her breath catches as she stops mid-sentence. I feel paralyzed. The year and a half of training we’ve undergone has left me completely unprepared for how to handle this. For all of our small group sessions on medical ethics, DNRs, tort reform, and other variations of legalese, not once had we ever spent even five minutes on the best way to respond to a patient that tells you they have metastatic lung cancer. Yet here I am, not with an actor, not with a peer, but with an actual human being who is looking to me, the 2nd year medical student, for an appropriate response.
My voice weakens, my attempt at projecting confidence now replaced by an overwhelming sense of empathy. What comfort can words offer in a situation like this? As someone who majored in the English language, I’ve never felt more acutely at a loss for words in my life. I offer up some platitudes, and I mean them, but they feel cliched, fake, and pre-packaged the second they tumble from my lips.
We continue talking. She tells me that she has no family history of cancer, and that she never drinks alcohol, has never tried drugs, and, perhaps most frustratingly, has never smoked a single cigarette in her life. Yet here she is, a fatal tumor festering in her lung. She tells me that she exercises 30 minutes every day because she absolutely loves the feeling she gets when she’s had a good workout, and I can tell by the glow in her face as she says this that it’s true. She’s married, but her husband and 2 daughters are still in the Philippines. Her eldest daughter is 24 and works as a nurse, and her younger daughter is 21 and looking for a job in Singapore. She came to America in 2008 to find a job to support her family, as they’re struggling to make ends meet. She tells me she hasn’t been able to find any jobs since she came here, and has been working part-time as a nanny.
I ask her if her family knows that she’s in the hospital, and she slowly shakes her head. She tells me that she doesn’t want to bother them because they would rush to find a way to America even though they have no money or means to do so. She tells me her dream is to be flown back to the Philippines so she can die at peace with her family, but she can’t even do that because she hasn’t been able to find a job or earn any money in the past few years. She says that doctors have recommended a colonoscopy, mammogram, and pap smear to search for metastastic cancer to her colon, breasts, and cervix, respectively, but that she declined all of those procedures. She’s resigned to her fate. She has no money to fly home, and her family has no money to fly to America to see her. Her only option is to die in this hospital in peace.
I’m speechless. There’s nothing inherently wrong with her reasoning, but that can’t be the only option left…can it? I struggle to think of or voice any alternative. I look at the next question on my checklist. “How many sexual partners have you had in your lifetime?” I put my clipboard away. We’re beyond this now.
As I’m contemplating all of this, there is a lull in our conversation. She breaks the silence and tells me that the doctor said to her that her cancer was ‘incurable’. She then asks me the question I had been dreading - how much time does she has left? A million answers are flitting through my head. In this short amount of time, I’ve been so impressed by this woman’s courage, yet heartbroken by her resignation and her solitude. I want to say anything I can to make her feel better yet I know I ethically can’t say anything to give her any false hope.
“Well, ‘incurable’ is a vague word. It could simply mean that the cancer is ‘treatable’ but won’t completely go away, so you could have a significant amount of time left till it returns. Or it could mean that it truly is very dangerous and that there’s not much doctors can do. I wish I could tell you definitively which of these is the case, but don’t lose hope.’
She smiles again and says that all she can do now is pray, and that’s what she was doing before I walked into her room. I brush this aside and try again in vain to convince her to tell her family. I can’t begin to picture the thought of her two daughters, who are my age, waking up one morning to find out that their mother died from lung cancer, tucked away alone in a corner room at Elmhurst Hospital, in the middle of Queens, NY, thousands of miles away from the very reason she came to America to begin with - her daughters, and their happiness. She tells me she’ll consider it, but makes no promises.
I don’t even attempt to perform the physical exam on her. The last thing I’m going to do is check her reflexes with my hammer, or see if she has earwax with my otoscope. I’m angry. This is what medical school has armed us with when we walk into the rooms of patients like this? I want 5-fluorouracil, 6-mercaptopurine, vincristine, methotrexate, cyclophosphamide. Yet here I stand holding a goddamn tuning fork.
The chest tube I noticed upon first entering the room was inserted to drain a pneumothorax, a pathological condition where an excess of air accumulates and surrounds the lung, exerting a force upon it so that the lung is unable to expand normally when breathing in air. Yet the tube was mistakenly placed in the wrong location, necessitating an emergency ‘do-over’ without proper anesthesia. She cringes when she tells me that she spent the last night howling in pain in the aftermath of the procedure. I’m not sure how much more this woman can take.
Our time is up, and I struggle to find something helpful to say, something that makes my presence here worth it. I note that there’s an empty cup on her tray, and ask her if I can get her more water. She smiles again and replies that she’s been wanting water all morning. I feel a flush of victory - so I am able to do something to help her. Yet it leaves just as quickly - is this all the help I can offer as a medical student, a doctor in training? A cup of water? I feel as useless and irrelevant as the tuning fork in my coat pocket.
I thank her for her time and tell her that she was my first real patient. I tell her that I won’t forget her, and that she’ll be in my thoughts. I move to leave, but she reaches out her arm and touches my hand. She ends our interaction with a simple set of words that sears itself into my mind: “You know, I had so many dreams. I had so many plans.” She shakes her head and sinks back into her bed. It all feels surreal, like something out of a novel or movie. But it’s as real as it gets. I nod my head, which feels like it weighs 10 tons, and we grip hands tightly before I leave. I realize that apart from her doctor, I’m the only person she’s actually talked to about this.
I walk a few steps before I dart down a side hallway and press my back up against the wall, taking deep, measured breaths. I can’t wrap my mind around the suddenness of it all. Hell, 2 weeks ago, I checked myself into the Mount Sinai ER for a sudden stabbing pain in the exact same location as hers. It turned out to be nothing, but I can’t stop thinking about the ‘what if’. 2 different people, one 23 year old medical student and one 52 year old mother of two, walk into an ER with the same exact kind of pain. The 23 year old walks out fine, goes home at midnight and hangs out with his friends at home. The 52 year old gets an X-ray, undergoes an invasive, painful biopsy, and finds out she’s dying. Two sides to the same coin, yet my Fate just happened to correctly call heads as it flipped in the air, and I was spared. She wasn’t. For her, there’s no reversal of facts, no twist in fate or do-overs. She can’t just shut her eyes tight and hope her reality changes when she opens them. It sits there, weighing on her, an immovable boulder, a crushing finality. And the worst thing is, she’s alone.
I know that I will wake up tomorrow and will begin to move on. I know that inevitably, after 2-3 days, I won’t be thinking about this as often. And within a week, I’ll most likely forget about this entirely. I have the ability to shut this out of my mind and occupy myself with other tasks at hand. But she doesn’t. She wakes up and her reality is the same, unchanging, staring her in the face like the unflinching, merciless God she was praying to before I walked in.
——————————————————————————————————————————————
I re-read what I’ve written and it sounds so trite, so obvious. This is the story of every budding medical student and physician’s first emotional encounter with a terminally ill patient - what have I brought to the table that’s any different? But maybe that’s not really what this is about. There’s a reason cliches become cliched - they hold an inherent truth that is common to all those who experience it. Maybe the point isn’t to be different and write a scintillating tale for an audience, but to write about this first patient encounter for myself. Maybe the point is simply to document my feelings at this point in time so that in a few years, when I inevitably become jaded to the horror that is senseless, random, and undeserved death, I can remember how it affected me the first time I encountered it in a clinical setting as a medical student, and maybe I’ll retain a stronger sense of humanity and empathy as a result. Maybe.
Fittingly enough, I’m about to finish The Emperor of All Maladies by Siddartha Mukherjee, a phenomenal biography of cancer. In it, he writes, “Medicine begins with storytelling. Patients tell stories to describe illness; doctors tell stories to understand it.” So I want this story to serve as my very first attempt to understand disease as it senselessly strikes down inspiring, beautiful people like DR. I will try to always remember her as my first patient, my first story, and as such, the true beginning of my career in medicine.